Who, you might ask, is Lewy?

The short and sweet answer is that Dr. Lewy and Dr. Alzheimer were working together when Dr. A found the tangles in the brain cells which are characteristic of the symptoms we know of as Alzeheimer's Disease. Dr. Lewy identified a second type of dementia, characterized by structures in the brain cells which are now known as Lewy Bodies. Dementia with Lewy Bodies is a lot like Alzheimers, but symptoms come and go, become more intense and less so, from day to day and sometimes from hour to hour. (Can I say minute to minute?) It is the third most common type of dementia.

Not sure where this adventure will take us, but my husband Ranney was diagnosed with DLB (shortcut) this past fall. To most of us it seemed a sudden thing, but looking back, we could identify occurrences that were definite signs that this was coming.

In this blog we will chronicle some of the heartbreaks and humor that come up when living with DLB. And yes, humor, we laugh, often.

Wednesday, 22 March 2017

The flowers on the quilt

Here is the story of the flowers on the quilt. This happened early on, and I thought, well that's odd, but didn't bring it up at any doctor appointments or anything. Perhaps if I had...

We were sitting on the bed and Ranney says: "Those flowers are fighting."

"They are?"

"Yes. Those over there are okay, but these are fighting."

We went back and forth about it for a few minutes and then I change the quilt. I don't believe we used that quilt again while he was at home.

One thing that happens with Lewy Bodies is visual hallucinations. This would be a form of that. I put it together later that it was.

Monday, 20 March 2017

Nursing Home

It's tough to have to live in a nursing home, even one that is nice and well fitted for your needs.

Ranney told me one day, "This place is okay. I don't mind living here."

Sigh of relief.

Until a day or two later when I read in his journal: "Kathy just doesn't understand sarcasm."


I am back to tell some of the stories.

Ranney passed away last June 16, 2016 at approximately 6:15 a.m. The nursing home had given us a room to ourselves. Rachel came the previous day from Boise. Friends came and sat with me until she got there. She had been there with the family the weekend before, and Karen and the whole crew a week or so before that. Chris had come the previous day, and Monsignor Ecker came and anointed him. We knew it was coming.

It was my birthday.

Rachel and I had been keeping vigil. Taking turns resting on the other bed in the room. She woke me early and told me she thought the end was coming. I held his hand. Suddenly, he opened his eyes, looked at me, then squeezed my hand, and he was gone.

In the wake of Robin Williams wife talking about his Lewy Bodies, friends have asked about the symptoms. I have decided to rewaken this blog and tell the stories. Some of them are terribly sad, some are scary, and some are downright funny.

They might give some wake up calls to some of the readers--to see things earlier than I did.

Wednesday, 17 February 2016

Memory Loss

Oh, please, Lord God. May the things that he DOES remember not be the times I was cross with him.
 
Amen

Sunday, 14 February 2016

Money

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For a while he had an obsession with coins. He had had a bunch of coins for a long time and then started counting them over and over and finally putting them into coin rolls. He cashed those in and is less concerned with them as he was






Instead it is a great sum of money that he "has" but the bank personnel are not allowed to tell me about it. He says I should use it to pay off ALL the bills, even the mortgage. I don't suppose it occurs to him that if I can't know about it I can't very well use it to pay those bills.




We had to be into the bank for some business the other day and when we were finished he got a withdrawal slip to take some money out of his small savings account. He made it out for $4000. The account was currently at $160 so he only took out $150 which he then gave to me. He was content with that. But still insists that he has $200,000 in some secret account. (Sometimes it is $6000 and other times it is $180,000 or at least will be in December.)




I am still not sure if that poor teller thought he was trying to rob the bank of $4000.





Thursday, 11 February 2016

Three parts

There are three main sets of symptoms of Dementia with Lewy Bodies.

Memory problems

Parkinsonlike symptoms

Hallucinations--acting out dreams

We have seen all at one time or another.